California BOUND

We are now back in California. Michigan was great, but mommy says we need to go back to California so she can finish her schooling. I love having my California family surrounding me but I dont understand why I can't see my Michigan family very often. Mommy says its because they live too far away. I got to see my Mammy, Auntie Madie and Uncle Gabe for a few weeks! They're so fun! I just wish I can see Mui Mui & Ceci. Next month I get to see my Nana (gramma from Michigan) for 15 DAYS!! Cant wait to see her!
I am doing good as far as all the doctors go. I am still in remission as of June 16, 2010. I am just now waiting to see doctors out here.
Daddy & I have sooo much fun while mommy goes to school. He takes me to the park, for walks, plays outside & he lets me eat junk food sometimes. He is the BEST daddy ever! The other day he even called mommy while she was at school so I could talk to her.. I even held the phone myself.
Just this last week I had to go to the ER (urgent care wouldn't take my insurance)..anyways I had a abcess on my booty, it hurt soo bad to sit down! Well we went there & the doctor there was so mean! He put lidocain on the top of it then injected a little lidocain and worst of all mommy & the mean nurse held me down while he had to cut it open & drain it! I know they did it because if it didnt get done I would be in a way worse situation but come on I'm only 19 months! I'm doing so good now! I've been taking all my medicine & trying not to pull on my band aid but sometimes it gets annoying!
When I want attention now all I have to do it hold my "owy" and start whinning saying "owy". Mommy & Daddy come running over giving me soo much attention. I LOOOVE IT!
Well I'm off to go get a BITE. Love you all & I miss you like crazy!

New times in Michigan

I am offically ONE years old and I just moved to Michigan with my mommy and daddy. Its sad because I miss my Nanna, Pappa, Aunties, Uncles and my FAVORITE cousin Coco.

I have learned sooo many new things since I've been here. I have learned to say "Coco, stop, thank you, etc", I know when to shake my head "yes" or "no". Also I love climbing the stairs! It wears me out but its a lot of fun.

Just this past week I went to my new Oncologist and my specialist. They were very nice. I had to get my eyes dialated again... that wasnt so fun, but they did make a new appointment for me get my eye exam. My mommy said it was June 16. When I went to the doctor they weighed me and made me stand next to this wall with numbers on it. Mommy said it told them how tall I am. I am 23lbs and 32in.

We are having a lot of fun here even though I dont get to see the rest of my family. I love to play with uncle Gabe. Daddy and I have lots of fun too.. we play basketball, try to play hockey, and he even lets me hold the extra remote control when he plays video games! I am so happy I have such a good daddy!

I dont like baby food anymore! That stuff is gross. I am eating big boy food now. Everytime someone has something I want all I have to say is "BIIIIIIIITE" and I get some. (haha I have them wrapped around my little chunky finger). I love potato salad, hamburgers, fries, carrots, bananas, beans, corn, ICE CREAM, and a lot more things that if I list it, it will take up the WHOLE PAGE!

I have to go now because mommy and daddy say its time for bed and I am super tired and need my babba..

some new pictures

Soo much has been going on..

Wow, I have not been on here in so long. I'm sorry everyone. Everything has been so busy/crazy. Alot has happened since the last time I was on here.

I am getting so big now. I am 9 months 19 lbs and 29in long. I still don't have any hair but once chemo is done I am for sure I will grow some. I love hair. The fun part about it is when I pull mommy's or nana's it makes their head go sideways and they get these weird looks on their faces and say "ouch". It makes me laugh. I still haven't got the crawling down. I just love to roll and be held. I can stand up holding onto the couch tho. That is very fun. I love all my toys I have too. I learned a new game, I throw it on the ground and someone picks it up for me, I do it again and they pick it up again. Its so much fun. I love kisses and hugs too.

First, I made a few trips to the Kaiser's ER for a fever, then transported to UCSF. Thankfully, nothing was wrong. Kaiser wasn't very clean about getting their tests. Their test showed I had some bad infections. When I got there UCSF took some more blood (the right way) and I had to stay there for 2 days just to make sure I didn't have those bad infections. Nana Jill made a very cool video of everything on her blog for everything that has happened. Take a look at it.

NOW, onto the best news ever. The past 2 times I went to UCSF for chemotherapy the tumor was "dead". Dr O'Brien called it "non active". The doctors are very optomistic about this being my last chemo. The only reason why I have to get the last 2 times and maybe 1 more time is because there is some "hazziness" or "seeds" in the jelly part of my eye. They don't laser anymore, which I LOVE because my eyes heal a lot faster and don't hurt so much. I have to go back December 1st to have the final decision made. I won't be able to eat then they will put me to sleep to look into my eye and see for sure if there is no more hazziness.

I am having faith that this last time was the offical last time. If so, I will have to still go back to UCSF to have routine eye exams to make sure everything is ok and no other cells grow back.

Thank you everyone for praying for me. It has helped in every way.

It's Working!

Hey everyone! Thank you for all of the prayers, it's working! I had my second Chemo treatment on Tuesday June 16. Mommy, Daddy, Nanna and Papa took me to UCSF to see all my nice doctors and nurses. It's kind of a rough deal cause I have to get up early, drive to San Francisco (well Nanna actually drove), they won't feed me and this really gets me mad! Oh well, I guess one day out of the month I can miss a meal. I got to see Dr. O'Brien again, first. She's the nice lady that gives me the sleepy medicine and looks in my eyes. I went to sleep and woke up kind of scared, but Mommy and Daddy were right there and I started feeling better after a few hours later. Dr. O'Brien came in to talk to us and she told us that the tumor is shrinking!!!! and something about calcification too! I guess that means the tumor is dying and getting hard. Wow, that was good news for all of us! So keep those prayers going....It really works!!!

I had two days of Chemo. Day one was a little rougher cause I was still kind of upset from being asleep and my eye was pretty sore. The next day I was sleeping through most of it and it was shorter cause I only had to have one medicine instead of three. Even with all of this going on I did discover something new! My feet! Wow, they are pretty cool. Now while I lay in the bed getting treatments I have these fun, chubby things to play with. My next challenge is to get them in my mouth. I've come close, but they keep getting away from me.

I've been practicing my singing too! Mommy wants me to hurry up and talk English, but I'm having so much fun just singing out sounds and watching everyone make silly faces at me, that I might just wait a while on that!

papa is funny

Labs

Today I went to another really cool place, Mommy said it was UC Davis. I went there to get some of that red stuff that comes out of my new toy, the Broviac, Mommy said it was blood. She said they have to borrow some to see how I was doing with the medicines they gave me last week. Then my the Broviac had to be cleaned and flushed. I was a big boy. I didn't even cry..well until I had to get that clear sticky tape taken off so the nurse could clean around the hurt. Mommy and Nanna were there to kiss me and hug me to make the hurt go away and make me feel all better :)
In a couple weeks, I have to go back to that far away place with the fishys to get more medicine and another eye test..just to make sure the medicine is working. Dr. O'Brien might be able to laser some of the tumor when I'm sleeping. That way I can get off all these medicines faster.
I want to say thanks to everyone thats praying for me and Mommy. Your prayer are seriously working. I've been such a strong big boy and thank you Jesus for keeping you angels and arms around me and Mommy. If we didn't have Jesus it would be way worse. Mommy tells me Jesus knows what I can and cannot handle, so I know I will be ok and have a great testimony to tell my younger cousins, friends, other family, and also to remind myself how much Jesus really does love me :D