In the recovery room. I was getting upset because I wanted to leave that room & go play with the fishys.
Friday, May 29, 2009
Wednesday, May 27, 2009
My First Treatment
Early Friday, May 22nd, morning we had to get up and drive a very long way. It was me, Mommy, Nanna, Uncle Travy & Auntie Heidi, Cousin Colton, Uncle Philip & Auntie Kate, Pawpaw & Memaw Barb. We all went to the fun hospital where there are fishys and very nice people that think I'm very handsome. I'm still not sure on what that means but I love the attention. When we got there Mommy took me to a room where they put this funny shirt on me. Mommy called it a hospital gown. After that they gave me more sleepy medicine. When I woke up Mommy and Auntie Heidi were there. Mommy called me her Champ and Trooper. When I was sleeping the doctor gave me this really cool new toy called a Broviac. Mommy won't let me play with it. She says it can hurt me if i pull on it too hard.
Mommy took me to another cool room where I had my own bed, fridge, chair, and video games. I met a friend named Steven that was on the other side of the room. I have exciting news, the nice doctors came in my room and told me that they looked over the pictures they took and they thought the tumor was bigger then it actualy was. They lowerd my doseage of the chemotherapy. I was supposed to get 2 days of Carboplatin, 2 days of Etoposide, 1 day of Vincristine, and after the treatment I would get G-CSF. But Jesus made my tumor smaller and the doctors decided to lower the dosage to 1 day of Carboplatin, 2 days of Etoposide, 1 day of Vincristine, and NO G-SCF.
The next day, really early, around 2am the nice doctor came and gave me my first dose of chemotherapy. Mommy said I did very good. I slept through the whole thing and so did Mommy. Nanna sat with me during the treatment. That whole day was a fun day. I had some of my family there. Cousin Colton was there. He was trying to steal my Mommy. I didn't like that very much.
Sunday morning around 2am, again, they gave me my last dose of the medicine. This time wasn't as fun. I kept drooling and spitting. Mommy said I was nauseated. But after while I was feeling back to normal. The doctors said we won't see the whole effect of the chemo until 7 days after the treatments. I will probably lose my hair, but I don't mind because I barely have any hair right now.
The next few days flew by really fast, but was fun. I went and got my hearing checked (just in case). I had to sleep through the whole thing. It was not a problem for me because I was very tired. The hearing lady told Mommy and Nanna I passed with flying colors.
Now, I'm home. I have a in home nurse that will come over and help mommy give me baths and to clean my new toy, the Broviac.
Mommy took me to another cool room where I had my own bed, fridge, chair, and video games. I met a friend named Steven that was on the other side of the room. I have exciting news, the nice doctors came in my room and told me that they looked over the pictures they took and they thought the tumor was bigger then it actualy was. They lowerd my doseage of the chemotherapy. I was supposed to get 2 days of Carboplatin, 2 days of Etoposide, 1 day of Vincristine, and after the treatment I would get G-CSF. But Jesus made my tumor smaller and the doctors decided to lower the dosage to 1 day of Carboplatin, 2 days of Etoposide, 1 day of Vincristine, and NO G-SCF.
The next day, really early, around 2am the nice doctor came and gave me my first dose of chemotherapy. Mommy said I did very good. I slept through the whole thing and so did Mommy. Nanna sat with me during the treatment. That whole day was a fun day. I had some of my family there. Cousin Colton was there. He was trying to steal my Mommy. I didn't like that very much.
Sunday morning around 2am, again, they gave me my last dose of the medicine. This time wasn't as fun. I kept drooling and spitting. Mommy said I was nauseated. But after while I was feeling back to normal. The doctors said we won't see the whole effect of the chemo until 7 days after the treatments. I will probably lose my hair, but I don't mind because I barely have any hair right now.
The next few days flew by really fast, but was fun. I went and got my hearing checked (just in case). I had to sleep through the whole thing. It was not a problem for me because I was very tired. The hearing lady told Mommy and Nanna I passed with flying colors.
Now, I'm home. I have a in home nurse that will come over and help mommy give me baths and to clean my new toy, the Broviac.
Tuesday, May 26, 2009
The Beginning
Wow, I've only been here four months and life is already exciting....and changing rapidly for me. I figured the best way to remember this is to write it all down so that when I'm older, I can look back and know what a miracle God has done.
My mom says I'm the cutest in the world... not sure what all that means, but sounds good. She took me to the doctor because my eye was looking funny. My family even noticed it. On May 16, 2009, mom took me to the ER to get my eye checked. The nice doctors looked me over and decided to send me to a specialist. Dr Ruben, who is a pediatric opthomologist. On May 18th we went to see him. Me, Mom and Nanna. After the doctor looked me over, he sent me in to have them put goopy stuff on my eyes and rub a stick over them. They called it an ultra sound...I called it goop! Then Dr. Ruben told my mom that I had Retinoblastoma. Dr. Ruben sent us to San Francisco to meet Dr. O'Brien on May 19th. Dr. O'Brien gave me sleepy medicine so I don't know much, but Mommy said she looked at my eyes very carefully to see how bad the Retinoblastoma was. They took a cool picture to see my bones, Mommy called it an xray. Then they took another cool picture to see the tissues in my eyes, Mommy called that an MRI. After all that was done they gave mommy all kinds of information for my next appointment to start my chemotherapy. I have to have the medicine once a month for two days.
My mom says I'm the cutest in the world... not sure what all that means, but sounds good. She took me to the doctor because my eye was looking funny. My family even noticed it. On May 16, 2009, mom took me to the ER to get my eye checked. The nice doctors looked me over and decided to send me to a specialist. Dr Ruben, who is a pediatric opthomologist. On May 18th we went to see him. Me, Mom and Nanna. After the doctor looked me over, he sent me in to have them put goopy stuff on my eyes and rub a stick over them. They called it an ultra sound...I called it goop! Then Dr. Ruben told my mom that I had Retinoblastoma. Dr. Ruben sent us to San Francisco to meet Dr. O'Brien on May 19th. Dr. O'Brien gave me sleepy medicine so I don't know much, but Mommy said she looked at my eyes very carefully to see how bad the Retinoblastoma was. They took a cool picture to see my bones, Mommy called it an xray. Then they took another cool picture to see the tissues in my eyes, Mommy called that an MRI. After all that was done they gave mommy all kinds of information for my next appointment to start my chemotherapy. I have to have the medicine once a month for two days.
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